CHASA (Children’s Hemiplegia & Stroke Association)
Over the past week my family and I road tripped to Arlington, TX for the annual CHASA retreat for families of kids with hemiplegia or one-sided weakness. CHASA = Children’s Hemiplegia and Stroke Association. I might have mentioned in an earlier post about our youngest child, Emily age 10, who has right-sided hemiplegia. More to come on that…
Okay, the best I can say about our family organization on our recent week-long vacation is that we did indeed have organization!!! Did I feel entirely organized? Well, no. But I’m still working on why and what to do about it.
I coded my 4 lists all in purple for CHASA (hemiplegia awareness) so I could find them all easily in Color Note.
I had 4 different lists in use while packing – one for the cooler we use to avoid eating out all the time, one for the bin of general supplies for picnicking and living away from home (including pool toys), a small first-aid bin, and the general packing list we use for any overnight trip (you know – socks, underwear, toothbrush, etc.). I always knew what was in each bin. Yes!!!
I did not personally pack the coolers or decide which items went in each one – one large on wheels, one medium-sized, and one smaller. That was a problem! The drinks and snacks that should have been accessible while traveling were not! We had to dig out a drink from a hidden cooler during a rest stop and decide right then what we wanted to have for the next few hours.
The bins and coolers worked well when we stayed in one place for 4 days.
My bin system worked well.
I really appreciated the organization of my bins during our hotel stays, but we really needed some kind of system for placement of the bins in our rooms. We stayed in two different hotels on the way to Arlington, one room at the retreat hotel for 4 nights, and one more hotel on the way home to MN. I knew what was in every bin and learned what was in each cooler, but the order and placement of the bins and coolers varied from one hotel room to another. I had to look right to left and back again each time to decide where the one I wanted was placed. I guess my brain needs a pattern to follow from one place to the next to keep my sense of order.
Hotel desk or “flat surface”!!!
More hotel desk or more flat surface!!
As you can see from the pictures, my family followed their usual pattern of placing random objects on flat surfaces. It didn’t take long before I felt like my brain was on overload with all the visual clutter around me. Aaaahhhh! Where do you put random objects in a hotel room?
So, organization was improved over trips of the past. I had my lists and I used them religiously. But there’s definitely room for more improvement.
On return home at 10:00 p.m., the first thing I did… swept and mopped the kitchen floor, dirtied by shoes coming in and out and sorted the mail accumulated over a week’s time to make it easier to deal with in the morning. 15 minutes!